CHESTIRE, CT, USA – Soliris, a drug made by Alexion Pharmaceuticals, which is given intravenously to treat a rare disorder in which the immune system destroys red blood cells at night, costs $409,500 a year -setting the world record for the Most expensive medicine.
The disorder, paroxysymal nocturnal hemoglobinuria (PNH), hits 8,000 Americans. Patients do not have to dig that deep to pay for the drugs. Insurance covers most of the costs – and there is help with high co-payments